Taken from the Times & Transcript's Life & Times Section: (with my own notes added)
May 12 was Fibromyalgia Awareness Day. Just to show how little is known about this terrible affliction, my spell check just picked it up as being an incorrectly spelled word. Even the computer doesn't know what it is.
"Every day is Fibromyalgia Awareness Day for my daughter. She lives in chronic, often severe, pain every day, 24 hours per day.
Today is a good time to encourage fibromyalgia awareness, as springtime is one of the worst seasons for the sufferers of this disease. Like other forms of arthritis, changes in seasons bring on even more excruciating pain and "flare ups" are common. Though not really labeled as an arthritic condition, it is believed to be part of that disease group, but it also mimics many characteristics of Chronic Fatigue Syndrome and MS. Continuous nerve supersensitivity is my simplified definition.
This disease affects not only the sufferer, but her/his family and friends as well.
As a mother, it tears at your heart, because your child is in pain and there is nothing you can do. The first time I recognized that my daughter was having extraordinary trouble with pain was when she was 19-years-old.
She would be in tears begging me to rub the pain out of her hands, but no matter how long I massaged, the pain wouldn't go away. Then one day, she asked me not to unbutton her blouses when I washed them because her fingers "wouldn't work" to fasten them up again.
She would go out dancing for an evening, and wouldn't be able to get out of bed the next day. Nineteen-year-olds should be dancing, they should be enjoying life --
Showing posts with label Fight for the Cure. Show all posts
Showing posts with label Fight for the Cure. Show all posts
Thursday, May 13, 2010
Wednesday, April 14, 2010
MS Society of Canada
Please help find a cure for MS by sponsoring Kim in the 2010 Walk. https://msofs.mssociety.ca/2010WALK/Sponsor.aspx?PID=1193110&L=2
By following the link, you may choose to sponsor her on-line or you may choose to print a sponsor sheet that you can send to Halifax. (You will need to choose 'yes' in the pop up box to continue).
Kim is the daughter of Brian Kenny of whom I spoke in "Time In a Bottle". http://annutterfruitcake.blogspot.com/2010/03/time-in-bottle_05.html
Kim lives with MS and Brian with Parkinsons. Thank you for your support in helping find an 'end to MS'. The Road is long and starts with you.
By following the link, you may choose to sponsor her on-line or you may choose to print a sponsor sheet that you can send to Halifax. (You will need to choose 'yes' in the pop up box to continue).
Kim is the daughter of Brian Kenny of whom I spoke in "Time In a Bottle". http://annutterfruitcake.blogspot.com/2010/03/time-in-bottle_05.html
Kim lives with MS and Brian with Parkinsons. Thank you for your support in helping find an 'end to MS'. The Road is long and starts with you.
Labels:
Family,
Fight for the Cure,
Finding a cure,
New Beginnings
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